JULIE (FOUNDER & PROJECT MANAGER)
In 2002, I was diagnosed with a rare form of ovarian cancer. I was not prepared for the mental & physical challenges of treatment and was grateful to be supported by a specialist nurse who was kind, empathetic and available to listen to, and be with, my pain.
In 2015 my dad was diagnosed with cancer. The support was minimal. A person-centred approach seemed lost. It is my wish to see a compassion-focused approach embedded in all cancer services, alongside support for patients to access the help they require, quickly, easily and directly.
A final thought: Every moment in conversation with someone who is suffering offers, at best, an opportunity for compassion and healing and, at worst, increased suffering and pain.
I was diagnosed with cancer in 2014. Surgery and chemotherapy followed. It was a few difficult months both physically and mentally. I am lucky as I was diagnosed early and had terrific support from my husband, family and friends.
I am a member of CanDu as I believe that collaboration with other charities and professional agencies, helps fuel ideas to create more practical, compassionate ways to develop support for people in their cancer journey. We all need others to help have a stronger, more caring, healthier, happier life.
A wee update. April, 2021.
In January, 2020 I had 5 years clear. A few days later I was informed I has a small mass on a kidney and i would have another scan again in 6 months. Following a scan in July, the mass had not changed but, after a coupe of biopsies, i was diagnosed with lymphoma, had 6 rounds of chemotherapy, responded well and mass on kidney also gone. I am in remission and having two years of antibody therapy to prolong remission. Again, I had and am having, wonderful treatment and support from Haematology Department.
What is different this time is, because of CanDu, I have an inspiring network of wonderful people I can turn to when I need to be heard. I can speak to people who really understand without heaping everything onto my family, who have their own fears surrounding cancer.
My cancer journey started in 1984 with a breast lump which was removed. Post surgery was lifetime taking of the tablet, Tamoxifen or bilateral mastectomy. The latter they said would be most effective, as cancer could return and I might not find a lump so easily.
So just before 31st birthday both breasts removed. 30 odd years later, I live a healthy life. So far!!!
About 10 years ago, I was speaking with a lady who had just been diagnosed with cancer. She seemed to take hope and comfort after listening to my story. So if I can help other people with my tale, I'm up for it!
Veronica has spent her professional life in community learning and development roles, most recently as a lecturer and part of the student support team at Dundee & Angus College.
Veronica has been treated for melanoma and as a lifetime sun lover she is keen to raise awareness around the growing incidences of skin cancer in Scotland.
If you have been personally affected by cancer or care for a family member and feel you have something to offer we would love to hear from you. We would particularly welcome new members who are passionate about user-led service change and patient and public participation.
November 11, 2018
JOIN THE NETWORK
If you work with cancer patients and their families we invite you to join our dynamic user-led co-production network. We are working together to make true 'co-production' and 'partnership' a reality in cancer care in Dundee
November 11, 2018
BE AN ARMCHAIR EXPERT
If you don't have the time or energy for meetings and events we still want to hear from you. Your opinion and needs matter and by becoming an armchair expert you help to give a voice to other cancer patients and their families in the best way for you. We can even arrange for you to attend our meetings by SKYPE if you like!!
November 11, 2018
I was diagnosed with Stage 4 Non-small cell metastatic lung cancer in August 2019. It was a bolt from the blue, I was paralysed by fear and felt completely powerless. This reinforced for me the importance of receiving support, early in diagnosis, to identify your needs, work through your fear and give you a voice in your own treatment. Despite feeling frightened and powerless we can all use our own lived experience to help others
Living with complex post-surgical issues following treatment for cervical cancer, Karen is keen to raise awareness of the importance of attending cervical smear tests for young women.
A cancer survivor herself, wife of a cancer survivor, and mum to a daughter of cancer patients, Margaret knows how vital it is to effectively support the children of cancer patients and she and her daughter are committed to ensuring this blossoms in Dundee.
Rubina is dedicated to ensuring that cancer patients from diverse communities have suitable, culturally sensitive, information about their illness and treatment and have the support they need to access existing cancer support services.
In addition, she is committed to raising awareness of cancer in general among BME communities.